Lupus: My Diary
67Living With Lupus
Lupus, Living With A Disease
Hi! To make a long story short, read my blog on Lupus. It will explain my life, and all the crazy things that have happened with my health.
I wanted to start a daily blog, explaining my every day trials with this disease.
Today is Friday, and Yes, the weather DOES play a big part on how I feel. Everything hurts! I have dealt with this for 5 years and deal with my terrible symptoms every hour. Of course, I'm weak, but I always try and eat something for breakfast. I don't know if everybody else with Lupus, loses their appetite, I definetly do.
Well, it has been a long weekend! I'm struggling with being weak. Of course, I eat...being Anorexic ( I dare not go there again). I'm doing what my body is telling me to do, at what time and chore. This is horrible, but makes me appreciate my "Good" days a lot more. Tmorrow will be better!
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Thanks for writing . It feels good to not be alone. There are days like today that i ache all over and I wonder what I have done to cause. it. Thanks for your honesty
Pamela99 Level 7 Commenter 3 months ago
I have had lupus for about 25 years, along with several other diseases. I recently started Benestyl which is the only drug that actually treats the disease and not just the symptoms. If you are not getting this medication, ask your rheumatologist. I believe it is helping me but I haven't been on it very long, however, my dream is getting off prednisone. I have been on it for over 20 years, plus I've had years of Methotrexate, Plaquenil, anti-inflamatories and so forth. I have found if I get stressed, I get sicker so I will say my attitude has changed greatly over the years. There just aren't that many big deals worth getting stressed over. I wish you good health in the future.